Most my friends and family think I have only been suffering from injury pain, but this is what I have really been going through. That's why I rarely leave my house, and if I do, I put on a happy face. I am a very positive person, but it's too hard to hide everything from everyone so I just stay in my room. I also don't want anyone to feel bad for me, and I really don't want to bum anyone out.
Anyway, I wanted to list EVERYTHING in hopes that someone suspecting Lyme disease will find this and get properly diagnosed and treated. I would have never, EVER known what was wrong with me without other people listing their symptoms on blogs and forums across the internet. Some days are worse than others, as Lyme symptoms come and go, change, overlap, etc. Lyme mimics hundreds of other conditions because it can hurt the body where ever it wants and however it wants. Only a couple of these symptoms can be attributed to my injury, but they could occur even without an injury. And yes, there have been times when I have felt every single one of these symptoms at the same time. Luckily that's rare and I'll only experience about 50 at a time. All of them wax and wane (come and go), which is such a classic symptom of Lyme Disease. I've literally had moments where I felt 60% healthy and moments where I felt 10% healthy. Usually I will see others in person like neighbors or go to church when I'm having an ok moment, but those moments never last. People would say, "You look like you're doing better!" and I try to just always say, "I'm ok". That's the safest word to use with all the horrible ups and downs that come and go at any moment. One day I was doing so well that I was able to take family pictures with my husband and son, and I looked like a totally healthy person. Nobody would have ever known I was chronically ill and injured.
100+ Symptoms
Burning toes
Cracking toes
Numb toes
Toes curling involuntarily
Spastic foot arch
Falling Arch
ACHILLES pain
Rolling, popping tendons in feet
Foot cramps
Freezing feet and hands
Popping, painful, burning knees
Sore heavy burning legs
Muscle twitching crawling spasms
Blotchy skin white purple red
Poor response to hot bath/shower
Poor circulation
Burning trochanteric
SEVERE SI JOINT DYSFUNCTION
Heavy hip pain
Sharp pelvic pains
L5 pain
Iliolumbar pain
Piriformis syndrome
Neuropathy
Swelling
Sacrotuberous ligament pain
DAILY DIARRHEA
GASTRITIS
No appetite
GAS
Liver, Gallbladder, Kidney, and Stomach Pain
EXCESSIVE burping
Mid back pain
Upper back pain
Left hand doesn't work right
Problems with dexterity
Finger tips sometimes white
Elbow issues, burning pain
Pain in old injuries in wrists
Popping wrists
Burning arms
AIR HUNGER
HEART PALPITATIONS, heart skipping beats, RHR 100+
Chest pain and pressure
Shoulder blade popping, pain
SEVERE STIFF NECK (could NOT move it for days at a time)
Left salivary gland issue
Left neck tendon issue
Pain at base of skull
Facial and scalp tingling
Head pressure
Head involuntarily shaking "no"
Head bobbing
Ear pain and pressure
TINNITUS
Cystic acne
JAW dysfunction and pain
Trouble swallowing
Crawling tingling burning tongue
Twitching numb tongue
Teeth marks in tongue
Stuttering speech
Word finding trouble
Brain fog
Panic attacks
Anxiety
Depression
Left eye feels weird, drooping, pain
Worsening vision
Burning eyes
Eye floaters
VERTIGO
Motion sickness
SENSORY OVERLOAD
Light/sound sensitivity
Bruising
Slow wound/injury healing
Full body tremors/vibrating/shaking
Flu symptoms
Extreme reaction to liver detox
React strangely or not at all to meds and supplements
Bad weather exasperates symptoms
Low blood pressure-Borderline hypotension
No coping mechanism for stress
FATIGUE
General weakness
No strength or stamina
WEIGHT LOSS
Nightmares
Insomnia
PMDD
Poor tolerance to heat/cold
Muscle atrophy
Bad temper (Lyme rage)
A burning, falling feeling upon waking
HASHIMOTOS
Food sensitivities
HIGH morning cortisol
Low iron storage
Low vitamin D
Thyroid on low end
Difficulty reading, writing, typing
Severe response to steroids
Symptoms of MS, Autism, Fibromyalgia, Adrenal Fatigue, etc
Is there anyway I can contact you? I have Lyme and really want to ask you some questions!
ReplyDeletePlease let me know if there's a way to talk!
ReplyDelete