13th & 14th Treatment

Today at the clinic I had Vitamin C IV bag and either hydrochloric acid or hydrogen peroxide. I did the ionic foot detox bath and did my 3rd ozone insufflation bag. I drank my juiced greens and did my healing hypnotism tape. Still doing Paleo as usual and am taking my supplements with every meal. LDM-100, VFT, Clarkia, AF-Beta Food, Vasculin, Salmon Oil w Black Currant Seed, Cataplex B, Spanish Black Radish, AF Beta Food, and Parotid PMG. To be honest I don't even know what most of that stuff is or why I'm taking it. I've been reading about a lot of things I would like to try and take but I don't want to overdo it. These past couple weeks I have had good days and bad days. I've felt glimpses of normalcy but lots of crashes, too. My neuropathy has been flaring, I've been on edge a lot more, my stomach gas/burping still plagues me, and now I have this new dark gray floater in my left eye. It looks like a dust bunny. It's not something in my contacts and it's not something I can rub out of my eye. I knew my eye was being affected by Lyme but this is different and it's somewhat upsetting. 

On Tuesday (my 14th treatment) I had 3 IV bags and we headed home. I've been a mental and emotional wreck the past couple days and I'm not sure why.

12th Treatment

I had a very good day yesterday. I feel like infrared saunas are magic! I felt sick on the way to treatment this morning. We didn't go yesterday because they had to close the office down, and go to Boise to fight a bill. I believe they were successful. Today, I had the big guns again. I did the magnet bed and foot detox, refilled supplements, and prepaid for a second round of treatments (10 total). I had some great talks with patients and didn't feel completely overloaded as I spoke. My brain was working a little better. Tonight I feel tired but wired. Exhausted but like I'm not allowed to sleep? The office is closed next week for Spring Break so I'll be home without treatments.

#lymediseasechallenge

Paleo Pancakes

http://civilizedcavemancooking.com/recipes/breakfast/perfect-paleo-pancakes/

Infrared Sauna

So, today my chiropractor kindly took me to her trainer/nutritionist. I sat in her infrared sauna for the first time and had aroma therapy afterword. I literally felt like it helped my pain and after I got home, I was able to tidy the house and drive across the road to the grocery store. The weather is also beautiful today and my cycle is finally finished so I had a lot going  for me today. I really do think it helped me to feel a bit better. I have not broken a sweat in a VERY long time. The trainer said that was not a good thing. I want to try and go three times a week if possible. I have to bum rides until I feel well enough to drive. I don't want to push myself or overdo it, though.

10th & 11th Treatments

I'm having a hard time typing because my fingers don't want to work right.

My mom took me to the clinic this time. I had my tenth treatment on Monday, and then had my re-evaluation on Tuesday. The doctor told me about other options I have since it's been a month, and I don't feel any different. He told me about a doctor in Park City who does Stem Cell therapy and I have actually been wanting to go see him for injections since he has the option of conscious sedation. We talked about me eating eggs and almonds again and that I no longer have hypotension when I stand up, and my blood looks a little better. To be fair, I'm sure I don't feel much better because he hasn't been hitting me with "the big guns" as he calls them (hydrochloric acid, hydrogen peroxide, and boat loads of vitamin c and magnesium). The first time he did that, I had a horrifically violent herx. So he spent the last month stabilizing me, which I thought was great and smart, but wants to bring out the big guns again. I agreed. He also wants to try a couple different pain therapies on me, too, and added more supplements to help me detox. Then, he sent me in for the big guns.

The big guns wiped me out. My pulse went up, and I felt like I was burning up. I felt completely dehydrated, and my neurological symptoms were magnified. My eyes were burning and really heavy, and my legs were so wobbly. My left eye and the left side of my tongue and face felt weird, and my legs were wobbly. I got SO nauseated, too. However, I remained calm. My mom and the nurse seemed worried and the doctor came in to see me. He said he was not surprised by the reaction I was experiencing, nor was he alarmed. I told him I was not alarmed, either. I remained calm because that is what it feels like when bugs are being murdered. Treatment is just HARD on my body, but I HAVE to stick it out because how else is this disease supposed to be killed and sent into remission??

When I got home, my son was so excited! He ran out the front door and yelled, "Mommy! You came back!". He then gave me the biggest hug I've ever had from him. He'll be three in a few weeks. That was awesome.

I barely ate dinner 'cause I was so nauseated, took all of my supplements, I did a ginger bath, and went to bed. I actually slept very good.

Today I had a hard time in the morning but I usually do in the mornings. My sister-in-law helped me a lot, and I am just trying to take it easy.

Tomorrow I'm doing infrared sauna for the first time, and I think I'll see what else I can do as far as detoxing. I'd like to try dandelion root tea, too.

More Paleo

Spinach, alfalfa sprouts, celery, avocado, coconut oil chicken, turkey bacon, apples, and grapes. So, basically, a chicken salad sandwich minus the gluten, dairy, and nuts.

Hard Day

I have been very weak and twitchy today. I'm also very groggy and confused. My legs have been weak and I feel like I should be moving around when I hold still. My left foot is vibrating and twitching. My eyes burn. I've got the gasping, jump out of my skin feeling that I can't even explain. My chest hurts and my scalp and lips are tingling. My hands and fingers don't work right. Ringing in ears. Neck feels like it can't hold my head up or straight. I was in my little scooter grocery cart at the store and I felt like I was lost and didn't know what I needed or where I was going or what I was doing. My mom was with me so I wasn't afraid but it's really difficult. I'm so hungry. I'm always hungry but it doesn't even feel like good goes to my stomach when I eat. It's just a constant, empty hunger feeling. It's a tormenting feeling. I had to wear sunglasses in the store cuz I have sensory overload. I did bond with a horse on the side of the road today. My mom pulled over so my son could see them but I was the one who ultimately benefitted. The horse was so powerful and calm and I felt like he was sharing his energy with me. I loved it. I wonder if he could smell my disease. I'm trying to watch American Idol but my brain can't process all the lights and noise. I'm a VERY musical person, but the Lyme  takes that from me most days. Some days I can enjoy it, but most days it is just a jumbled noisy unprocessed mess of confusion and irritating sounds.

9th Treatment

I was in SO much pain this morning! I think because I always hurt after neural therapy, a huge snowstorm came through, it's that time of the month, I was up and down 20 times yesterday evening from insufflation side effects, and the motel bed wasn't the most supportive. It was so hard to pack up and get to the clinic but once I was there, I was able to be comfortable. I had an IV bag today and then did a quick hypnotism for pain, and then we were on our way. 

8th Treatment

Today I did a spot check, did my IV bag, did a foot detox, had neural injections in my SI joints, was given a new insufflation bag, and supplements for my heart that have been on back order for a long time. My heart is in bad shape from the Lyme so I am anxious to start these supplements. The NP did my injections and even though they were as horrific as always, she was skilled and kind. I really should be doing the deep Prolozone injections but they are so unbearably painful I'm afraid I literally won't live through it! I talked to the Lyme coordinator and told her how I don't really feel better. She says she thinks I'll definitely need 20+ treatments because I'm a very sick girl and told me it's usually 2 steps forward, 1 step back, 4 steps forward, 2 steps back, etc, with this disease and this treatment. She also says Dr J knows when to lay on the gas and when to hit the breaks and I think he's had to hit the breaks with me a lot 'cause  I'm super sensitive. I was doing ozone and vitamin c in my iv's toward the beginning and I told him how bad I herxed so I haven't had them since. I'm anxious to start them again because I keep reading how much it kills the Lyme. She is just so wonderful and motherly. Every staff member at the clinic is just exceptionally personable and amazing. We spent five hours there today. We took our sweet time because we did not want to return to our dingy motel. 

We are running short on money and are having to really be careful. My son is wearing extra clothes from foster care donations, I was wearing clothes from the DI yesterday, my husband is ordering the cheapest fast food on the menu, and we are in the cheapest, crummiest motel in town (we will be staying at a better one next time where the clinic's patients get a discount). All so we can afford these life saving treatments for me. We talked about selling our furniture last night but I hope it doesn't come to that. I always think about leaving our house and going into a little apartment but really, our house is such a good deal, it's the same price as the apartments next to us. So it would be counter productive, plus, moving would just add extra stress and pressure to my ailing mind and body so we will have to pinch our pennies elsewhere. I HAVE to continue these treatments, even if it means panhandling (ok maybe not, but it has crossed my mind SEVERAL times).

Go Fund Me

We are really starting to need help with these expensive treatments, so Adam's sister made this for us:

Link below to the donations page

http://www.gofundme.com/nfq3rs